By Lenn Thompson, Executive Editor
I had never heard of Angelman Syndrome until my wife Nena came home one day and told me that our friend's son had just been diagnosed with the neuro-genetic disorder. It's often misdiagnosed as cerebral palsy or Autism and those afflicted have little to no verbal communication, motor difficulties, developmental delays, eating difficulties and more than 80% develop seizures prior to age three.
Today, there isn't a cure for Angelman Syndrome and as with many other syndromes, diseases and disorders, there is never enough money to fund research.
Because Angelman Syndrome has touched our lives and the lives of those close to us, the New York Cork Report would like to help raise money and awareness for Angelman Syndrome research (through the Angelman Syndrome Foundation). We'll be hosting a wine tasting event at Roanoke Vineyards on Sunday, September 12, 2010 from 1 - 5 p.m. Shinn Estate Vineyards will also be taking part in the event as our guest winery.
are $35 and space is limited. Your ticket includes a side-by
side tasting of two of my favorite -- and long sold out -- 2005
merlots: Roanoke Vineyards 2005 Merlot and Shinn Estate Vineyards 2005
Nine Barrels Merlot. We'll have cheeses and other nibbles from the
Village Cheese Shop in Mattituck and Shinn Estate co-owner and chef David
Page will no
doubt add something tasty to the menu.
Throughout the event, Roanoke's current releases will be available by the the bottle and glass with 10% of all sales going to the Angelman Syndrome Foundation.
I will also be organizing a silent auction/raffle if I can get enough lots together. If you're a winery, brewery, restaurant or other business and are interested in donating something, please email me.
To purchase your ticket, please call Roanoke Vineyards at 631.727.4161 to reserve your spot, as space is limited.